Initiated in 1994 in response to a Congressional mandate to fund a study of adolescent health, Add Health is the largest, most comprehensive longitudinal survey of adolescents ever undertaken. As participants have aged into adulthood, however, the scientific goals have expanded and evolved. Multiple datasets are now available for study in the social and behavioral sciences.
- Cohort Data
Investigators interested in conducting cohort studies or utilizing data from cohort-based studies can access links several data resources. Availability may depend on suitability of proposed research, collaboration with study investigators, ethical considerations, approval from a steering committee, etc.
- Database of Genotypes and Phenotypes (dbGaP)
A variety of datasets from genome-wide association studies of cancer and other genotype-phenotype studies, including sequencing and molecular diagnostic assays, are available to approved investigators through the Extramural National Cancer Institute Data Access Committee.
- Dietary Assessment Research Resources
DCCPS provides links to dietary assessment data collection resources and tools, food composition databases, analytical tools, and surveys that may be of interest to investigators.
- Genomic Resources
This compilation of genomic resources includes links to collaborative initiatives, datasets, and NIH policy information related to population-based genetics research.
- Pharmacoepidemiology and Healthcare Databases
These databases can be used to access information about available national and international data that can help answer questions of cancer-related outcomes associated with pharmaceuticals.
- Physical Activity Research Resources
DCCPS provides links to physical activity analytical and assessment tools, datasets, and surveys and related resources that may be of interest to investigators.